Sunny side: A Fairly Good Start

05 April, 2013

A Fairly Good Start

This chemotherapy seems to wait with breaking me this second time. I dare trying a home visit for the weekend.

A sculpture in a niche in the
corridor wall on the third
floor at Hospice Lovisenberg.

Weekend. Yesterday I got my second dose of doxorubicin, and my condition is pretty good today. The last few days I have not been able to do much, but yesterday and today I have been in pretty good shape.

Today I managed to do most things myself, and I feel so well, that I chose to go home on leave for the weekend. Of course I want to be with my family as much as possible, so the choice was not that hard.

Before I went on leave I got the confirmation that I have to take Fragmin injection every day for the rest of my life. It's because I'm not as active as before, and the risk of blood clots increases.

Since I do not have two healthy arms, I can not inject myself. I would probably have managed to make it in a way, but I'm really a bit too wimpy.

My husband got a crash course before we left. He put today's injection, and it went very well. I felt nothing. A bit strange with these injections, sometimes it hurts like crazy, and other times I do not notice anything.

We have not made any plans for the weekend, we'll see how my condition turns out, but it would be nice to get out a little.

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Preface

This is the English translation of Anja Merete's blog “Solsiden”, originally written in Norwegian by Anja Merete and myself, her husband.

“Solsiden” means “The Sunny Side”, and was started shortly after Anja Merete was diagnosed with breast cancer. The name of the blog was meant as a contrast, irony towards the “verdict” from the medics.

The choice of top picture strengthens the irony, the catastrophe. It's a part of a publicity still from the Roland Emmerich movie 2012 (Columbia Pictures), with sunrise over the end of the world.

At first the blog was thought to serve as communication towards friends outside the near family. Anja would call the closest ones with news. She would keep on as long as she would endure, given the present situation. Then, the rest could get some details further than a simple status on Facebook.

It did not take much time to reach new contacts aswell; People with experience of breast cancer in near family. Other breast cancer patients. Nurses. Medics. More and more professionals and professions would use the blog for educational purposes. Media would contact Anja Merete for expert advice and fact checks and quotes.

All the while media, especially TV news broadcasts, have full focus on breast cancer, on how treatable it is, how many get cured, almost nobody dies from, and the huge problem being the low priority public hospitals give breast reconstruction (while private practices were, was and are busy repairing healthy breasts).

It is important to remember breast cancer still kills. It really seems like it is not. The “almost nobody” who dies from the disease is, among others, my wife. She is not “almost nobody”. Not even close. Not yet. And for some, she will never be.

This is the story of the patient who never played along with the rest of good statistics regarding breast cancer in the 2010's. It is presented in blog form. In reverse order. Back dated.

Be adviced: Blog entries are published as soon as they are translated. It will take quite some time to get up to date with the original blog.